An Ode To Type 1

During Jubie’s speech, at the recent Sugarplum Dinner, she included an Ode that she had written during one of the very long and lonely nights whilst looking after her daughter Aliena.

An Ode To Type 1

An angry and cruel beast you crept into our lives
Slowly manifesting yourself as a hideous surprise
An evil curse we just can’t shake
Leaving a trail of devastation in your wake
We laugh, we cry, we constantly ask ourselves the question why?
A rollercoaster of highs and lows over the years
With more days than not ending in tears.

Sweets, chocolate and biscuits are banned,
The doing of your very own hand
The same packed lunch every day at school
Whilst everyone tucks into pudding around her,
How can you be so cruel?
Even with constant monitoring perfect results can’t be guaranteed
Counting every single carb as you seem to watch on with glee
So many other factors can turn things awry
However diligent we are and however hard we try.

Night after night you make me want to scream
Waking our precious child from her sweet deep dreams
I walk down the hallway in silence so deep
Keeping a constant watch over her as she sleeps
I hold her hand tightly fingers so small
Constantly questioning why you came to call
I watch her breathing so peaceful and warm
No evidence of the forces inside fighting the constant storm.

Will we ever be free of injections and blood testing
I sit and wonder as I watch her resting
The beep of the meter breaks the silence of the night
A small drop of blood tells me if everything’s alright.
The seconds count down to the final display
I wait with baited breath, knowing the repercussions from it will say
My heart sinks as I see the number is low
Another test done, but a lifetime more to go,
I try to wake her and force feed glucose
How long until she is out of the danger zone who knows
Time passes by, while I wait for the number to rise
And I sit in the darkness and quietly cry.

How can you do this to someone so small?
As strong and as brave she can be,
She will always be my baby most of all.
But I have to stay strong and for her I will fight,
And we will take you on with all our might.
We are teaching her to master and conquer this foe
You will not dare stop her, I have her promised her so.
So don’t for one minute think you’ve won
This battle has only just begun.
Your time is up type 1, your time is now
The curtain is falling, and you must take your final bow.

So know this, little stars, we will fight until the end
And on that you really can depend
With all the money that is going to be raised,
Thousands of childhoods will be saved
And the time is getting closer when you won’t have to be quite so brave.

Written by Jubie Wigan

The Sugarplum Dinner 2017 raises £750,000 for JDRF

We are extremely proud and excited to announce that the final Sugarplum Dinner, held on 14th November 2017 (World Diabetes Day) raised a staggering £750,000 for JDRF, taking the total raised by Sugarplum Children to £1.6m, which really will change the lives of all those brave little stars who live with this condition.

The dinner was a star-studded affair at London’s iconic V&A Museum, attended by 400 guests, including the Prime Minister, actors James Norton & Jeremy Irvine, all of whom live with the condition, as well as Jamie Dornan, Rafe Spall, Jack Savoretti and a who’s who of London’s poet players.

James Norton welcomed everyone to the breathtaking Raphael Galleries, before founder of Sugarplum Children, Jubie Wigan, spoke about her family’s battles with the illness, finishing with an Ode to Type 1, after which there was not a dry eye in the room.  The silent auction took place whilst guests enjoyed a delicious dinner cooked by Last Supper, and then followed the live auction with Chairman of Sotheby’s, Lord Harry Dalmeny.  The sought after lots included dinner with James Norton, a private concert with singer Jack Savoretti, and a week staying in the most luxurious house on exclusive island of Mustique.

Guests then partied until the early hours to DJ of the moment, Hugo Heathcote.  Jubie had always said she wanted to ‘go out’ with a bang – and she most certainly did!JDRF V&A 003IMG_9742IMG_8358JDRF V&A 019JDRF V&A 014JDRF V&A 081

Mandatory Credit: Photo by Richard Young/REX/Shutterstock (9222971ag) Theresa May, Jubie Wigan, Charlie Wigan, daughter Aliena and son Caius The Sugarplum Dinner 2017 at Victoria and Albert Museum,, London, UK - 14 Nov 2017

 

Hooray For Theresa May!

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Aliena Wigan, pictured with the now Prime Minister, Theresa May, at the Sugarplum Dinner 2016.

Yet another apology for not having written anything on the site for a while – juggling work and family life, as well as Sugarplum Children,  seems to be harder than i thought it would be, but I couldn’t not mention the most exciting thing to have happened in a long time – the fact that not only do we have a female prime minister, but more importantly, one who lives with type 1 diabetes.

Having met Theresa at both of my Sugarplum Dinners, I can’t begin to stress enough what an engaging, witty and likeable person she is.  And more important than that, she is a woman of her word and will always support a cause close to her heart whenever possible.   The Sugarplum Dinner last year was held three days after the attacks on Paris, and despite being strong advised by Scotland Yard not to attend any public engagements, the then Home Secretary ignored there advice as she had made a promise to come and show her support, something which meant the world not only to me, but more importantly to Aliena as well.

So how wonderful it is to have a Prime Minister who lives with type 1, to show all children living with any illness that anything really is possible. In her words ‘it doesn’t change what you can do’, an inspiration to any parent or child affected by this unrelenting condition.

Every cloud does indeed have a very bright silver lining.

Light At The End Of The Tunnel

 

First of all I’m so so sorry (yet again!) for my silence over the past few months. After the huge (but rather overwhelming) success of the last Sugarplum Dinner, I decided to give myself a bit of a break from all things diabetes, and focus on other areas of my life – obviously looking after my family, and in particular Aliena, meaning that it’s very rare that I ever switch off from thinking about blood sugars or carbs, but I decided I needed a break from the illness beyond the daily routine of managing her type 1.

It always takes me a month or so to readjust once the dinner is over – I throw everything I have into the organisation and thrive on the planning and execution, basking in the glamour and glory of the what we manage to achieve, so as you can imagine, once it’s over, all that remains are the invoices that need to be paid, and the ever present reminders that life with a child who has type 1 is far from glamourous.

But what an exciting few months it’s been – I decided that now that the school are dealing with Aliena’s bloods so well, and I’m lucky enough to have some more help at home, that I’m in a great position go back to work, and I’m so so thrilled to be starting a new three day a week job as of May, as Brand Director for a new men’s and womenswear label. I will of course still run Sugarplum, and will get much better and doing regular newsletters and blog posts, so you will hopefully be hearing a lot more from me!

I finally feel as though I can see the light at the end of what has been a very long tunnel (almost 4 years since what we call D -Day), so I wanted to share this with all fellow parents – that it really does get easier. With a combination of newer technology (the introduction of both FreeStyle Libre and her pump has quite literally changed our lives) and friends and family being less scared to look after her as a result; Aliena being able to take a bit more control of her diabetes; and me finally learning to let go of control both at home and at school, I feel as though I’m finally getting my life back, and I can’t tell you how AMAZING that feels!

I will always be a mother first and foremost, and you know what, a pretty good one at that, but oh boy am I excited to get on that train to London twice a week and remind myself that I used to be good at other things too…for too long I think I have let type 1 define our family, and as Aliena gets older I’m learning she won’t always want it to be this way – we have to learn to let it fit in with our lives, and not the other way round, and it feels pretty empowering making the first step towards doing this.

But panic not, after a well earned break, I’m now back ready to fight our cause with even more passion, energy and fire, so watch this space. As I said in my last speech

‘Where there is a will there is a way, and as any parent of a child who is ill will tell you, our wills are stronger than most – so here I stand dressed in my armour, war paint on my face, ready for battle; so you’d better watch out type 1 because I’m coming for you’. 

We can do it – between us all we can win this fight and ensure that life without type 1 for our precious babies becomes a reality.

Encapsulated stem cells halt type 1 diabetes in mice for six months

We were so excited to hear on the news this morning of this new development – and feel very proud to be helping to make a difference.  We know it will be many years of testing before these dramatic changes will affect our children’s lives, but it is still a very large, encouraging step!

Encapsulated stem cells halt type 1 diabetes in mice for six months

Harvard hero Dr Doug Melton, working on a project led by Dr Daniel Anderson and Dr Robert Langer at Massachusetts Institute of Technology, has today shown encapsulated human islet (insulin-producing) cells transplanted into mice can withstand the autoimmune attack in type 1 diabetes, effectively halting the condition for up to six months.
The findings, reported in Nature Medicine and Nature Biotechnology detailed results from ongoing studies to develop an encapsulated islet cell therapy for treatment of type 1 diabetes.

In 2014, Melton revealed as part of JDRF-funded research at Harvard that we could for the first time create massive numbers of insulin-producing cells from stem cells.

Encapsulated islet cell therapies are created by wrapping pancreatic cells in a protective barrier before implanting them into the body. Once implanted, the barrier shields the cells from an immune system attack, and the cells are able to sense changing blood-glucose levels and produce insulin and other required hormones as needed. The study released today revealed we can now protectively encapsulate cells produced this way within mice for a period as long as six months.

Sarah Johnson, UK Director of Policy and Communication at JDRF said: “We are really pleased our continued support of Dr Melton’s research is showing these results and an early indication that encapsulation could be a new method of treating type 1 diabetes in the future.

“It’s significant to see a study of this length return such promising results. If this study can be replicated in humans then one day we could potentially free people with type 1 diabetes from a life of insulin injections.”

The Sugarplum Dinner 2015 Raises A Staggering £620k for JDRF

A host of celebrities including Lord Julian Fellowes, Matt Barber, Masterchef’s John Torode and TV presenter Lisa Faulkner helped raise £620,000 at the second Sugarplum Dinner raising funds for JDRF. Other well known guests who were in attendance included Downton Abbey creator Lord Julian Fellowes, actors Tom Ward and Matt Barber, the Rt Hon Theresa May MP and Arun Nayar.

They were entertained by performers from Gifford’s Circus and DJ Sam Young provided the music. There was also a live auction, which racehorse trainer Charlie Brooks

Ms May, who has diabetes herself, said: “I know from personal experience of the challenges that come with a diagnosis of type 1 diabetes. But these challenges are all the greater when type 1 diabetes affects a young child.

“Parents need the right kind of advice and support to help them navigate through the difficulties and ensure that their child can thrive. That’s why the work of Sugarplum Children is so important – supporting children and families and fundraising for JDRF’s efforts to treat, prevent and ultimately cure type 1 diabetes.”

Lord Julian Fellowes said: “It is a pleasure to support Jubie Wigan and the wonderful work she is doing with Sugarplum Children. Seeing her young daughter Aliena cope so gallantly with this cruel disease makes my resolve even stronger to do whatever I can to help and of course so many people feel the same.”

Last year Lord Fellowes donated the naming of a character in Downton Abbey, who turned out to be Rose’s future husband Atticus Aldridge. This year he offered a signed leather bound copy of the very first script of Downton Abbey, which went for a staggering £34,000.

Other prizes available at the auction included the opportunity to ride the Goodwood racecourse in front of the crowds alongside Gold Cup winning amateur jockey, Sam Waley-Cohen and a day behind-the-scenes with photographer Mario Testino. A dinner party cooked by John Torode went for £40,000, and as there was such a fight between the two highest bidders, John very generously agreed to offer a second dinner, raising an impressive £80,000 in total.
Matt Barber said: “I was truly honoured to be asked to participate in this fabulous evening especially since my character in Downton Abbey, Atticus Aldridge was born at the last Sugarplum Dinner! Hearing Jubie speak about life for her young daughter Aliena, who suffers with type 1 diabetes, is humbling, and I’m delighted to be able to support the charity in finding a cure for this awful disease.”

Jubie said: “To see so many friends and family together supporting children like my own daughter Aliena with type 1 diabetes is just so overwhelming.

“Their support will enable JDRF to continue to try and find a cure for this relentless disease. My target tonight is half a million pounds. I also hope tonight will help to remind people about the seriousness of this disease. With Sugarplum Children I set out to be the voice for those who are too little to shout about it themselves, and this dinner has most certainly provided a platform from which to do this.”

JDRF funds research to cure, treat and prevent type 1. The organisation works with the government, academia and industry to accelerate research in the UK and within healthcare policy to ensure that the outcomes of research are delivered to people with type 1 in the UK.

Karen Addington, chief executive of JDRF in the UK and the nation’s charity leader of the year 2015, said: “The Sugarplum Dinner was an utter triumph. A phenomenal amount has been raised by the event to support JDRF’s work to cure, treat and prevent type 1 diabetes.

“Furthermore, the presence of A-list celebrities backing the cause means awareness of type 1 diabetes is reaching new heights.

“JDRF is deeply thankful for all who were involved with the evening – especially Sugarplum Children founder Jubie Wigan and her incredible family”.

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MR CHARLIE & LADY JUBIE WIGAN and their children CAIUS WIGAN and ALIENA WIGAN at the Sugarplum Dinner in aid Sugarplum Children a charity supporting children with type 1 diabetes and raising funds for JDRF, the world's leading type 1 diabetes research charity held at One Marylebone, London on 18th November 2015.SUGARPLUM DINNER042SUGARPLUM DINNER149

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Introducing The Sugarplum Candle

 The Sugarplum Candle – On-Sale from 1st October 

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We are hugely excited to announce the launch of The Sugarplum Candle, in collaboration with Wick & Tallow, whose candles were born out of a love for good design, great fragrances and a deep respect for heritage and character. The partnership was given the go ahead by my daughter, Aliena, herself when she saw that Wick & Tallow’s logo is a unicorn, her favourite animal in the entire world (fantasy or otherwise). Once we saw Wick & Tallow’s logo we just knew this was the company that was meant to make the Sugarplum Candle – if Aliena believes in unicorns then we should all believe there can be a cure for this unrelenting condition.

And we hope you will be as excited by the partnership as we all are! The scent, which includes sweet and gentle notes of white fig and vanilla, not only will evoke thoughts of deliciously sumptuous sugarplums, but it will bring the light of hope, something those of us affected by type 1 cannot live without.

The Sugarplum Candle will be available from 1st October at www.wickandtallow.com, as well as at the Nina Campbell shop on Walton Street, and Soho Home, the lifestyle shop at the recently opened Soho Farmhouse in Greta Tew.  The candle is £40 and for every one sold, £10 will go directly to JDRF.

 

 

Three Year ‘Diaversary’….

Apologies for not having posted for a while – the past few months have been so busy, trying to juggle other work, and begin a mother, whilst organising the next Sugarplum Dinner in November, but I promise to write more regularly after the Summer. Just bear with me!

Aliena just celebrated her three year diaversary, on 20th July and as sad it makes me to realise to what degree type 1 has become such an intrinsic part of or lives, I also felt strangely uplifted, to look back at those first few months after diagnosis, and to see how far we have come in the way in which we manage it.

Happy holidays everyone!